a baby girl, siezures and CDKL5….

A good friend of mine’s infant granddaughter was diagnosed recently with CDKL5, a rare genetic neurologic disorder that affects infants and small children around the world.  There is no cure.

The International Foundation for CDKL5 Research (IFCR) is the only 501(c)(3) non-profit organization dedicated to finding a cure for those children and young adults affected by CDKL5, a rare and devastating neurological disorder that causes severe seizures that begin in infancy and severe developmental impairment.  Our children with CDKL5 have been robbed of their childhood, and indeed, their chance at life.  Parents of children affected by CDKL5 are desperate for a cure, for a brighter future for their children.   Children with CDKL5 suffer from daily seizures, pain and isolation.  They cannot walk, talk or feed themselves.  They are totally dependent on others for every aspect of care.  Please help us help them.

Take Action Now for CDKL5

Help the International Foundation for CDKL5 Research win $50,000 from Pepsi Refresh:

We need YOU – to vote and tell EVERYONE you know to vote!

This is a great way to fundraise without opening your wallet!

Top 10 places WIN!


1. Text a vote: Send 102973 to Pepsi (73774)
2. Vote on Facebook: www.cdkl5.com/pepsi-refresh using the Pepsi Voting App
3. Vote on the Pepsi Refresh site: www.refresheverything.com/curecdkl5

Visit www.cdkl5.com to learn more and sign up for daily email reminders
Thank You for helping us move From Cause to Cure!

Tags: , , , , .
  • Trackbacks
  • Comments
  • Comments are disabled.
  • Trackbacks are disabled.